Recently, the actor Bruce Willis was diagnosed with an extremely debilitating disease and it shocked the public and his fans a lot, after all, the actor’s family brought up the diagnosis of actor’s frontotemporal dementiawhich has been manifesting itself little by little for some time and even made the star move away from important roles in cinema.
To learn more about the actor’s disease, and even more information, about symptoms and treatment. Continue reading:
Wife Bruce Willis shares letter about actor’s frontotemporal dementia: ‘Family with hope’
Emma Heming, wife of Bruce Willis, made a beautiful sharing of an open letter with the support of psychologist Rachael Martinez, she is also the founder of the organization remember me which helps the relatives of people who suffer from frontotemporal dementia, a disease known by the acronym FTD.
About a year ago actor Bruce Willis was diagnosed with aphasia, which was related to a brain injury that delayed the actor’s language and communication. The difficulty was in pronouncing words and even memorizing texts.
Since then, the actor has been treating the problem, which recently had its accurate FTD diagnosis due to other symptoms manifested. The psychologist also says in an excerpt of the letter of support the following words:
“FTD is brutal. It’s painful. It’s painful and confusing. It’s exceptionally unfair and because it’s progressive, it doesn’t stop.
However, there is another side to the darkness. There is light. There is goodness, and therein lies our hope that you can find it. While there is no roadmap, there are no concrete steps, and there is definitely not enough awareness and understanding to go through this — there is the sweetest, most tender love. It is a love that overcomes silence, strange behavior and the constant state of change.”
The psychologist lost her father who was affected by frontotemporal dementia.
Bruce Willis’ Mother Confesses “He Doesn’t Recognize Me Anymore”
Bruce Willis’s mother is 86 years old and according to her brother-in-law, actor Wilfried Gliem, she was too shaken to see her son’s debilitating state of health.
Recently a German newspaper called “Bild” said that the actor’s mother is quite worried about her son’s health, as he doesn’t seem to be able to hold sensible conversations, and often doesn’t recognize her.
Understand Frontotemporal Dementia
Frontotemporal dementia gradually destroys neurons in the frontal lobes, located behind the forehead, or in the temporal lobes, which lie behind the ears. The disease more specifically affects groups between 45 and 64 years old and is a progressive disease.
The disease also causes several changes in personality, behavior and difficulty in understanding and producing speech, delays in communication and disconnected words.
The disease is still neurodegenerative, and the more time passes, the more the symptoms worsen.
It is also genetic, and can be transmitted from generation to generation via genes, or from parents to children, due to mutations in specific genes linked to the Tau protein and the TDP43 protein.
Some symptoms that manifest themselves quite regularly, even more so with the progression of the condition, are:
- Aggressiveness, irritation;
- Impulsive behaviors;
- Repetitive movements;
- Temperament with sudden changes in behavior;
- Introversion, lack of social interest;
- Difficulty in speech and pronunciation;
- Difficulty memorizing texts, writing;
- Cognitive comprehension problems, understanding;
- Speak and interact in a disconnected way, with subjects and sentences in meaning;
- Forget people, word meanings;
- Muscle spasms and tremors;
- Difficulty walking, loss of motility;
All symptoms can worsen with the disease, time and age of the individual, further aggravating the condition, and the symptoms can weaken the patient so much, in some cases it can lead the person to become mute.
To confirm the diagnosis, tests of:
- neuropsychological tests
- liquor collection
- imaging exams
- genetic testing
- Complete blood count
Some types of medication are used to reduce symptoms and improve quality of life, usually these medications are like anticonvulsants, antidepressants and antiepileptics.
It will be important for the family to have people and caregivers to provide the necessary assistance to the person.
It is always important to avoid environments with a lot of noise that generate stress for the patient, in addition to cognitive-behavioral psychotherapy.
As this disorder evolves, the person may have more difficulty swallowing, chewing, walking and even controlling the bladder or bowel and, therefore, physiotherapy and speech therapy sessions may always be necessary.
Importance of a patient and family support network
Having a family member with an illness neurodegenerative It is not easy for the patient or his family, so it is important to have groups and support networks, mainly focused on mental and emotional health.
Frontotemporal dementia & Alzheimer’s disease, know how to differentiate
In the vast majority, this type of dementia occurs between the ages of 40 and 60, unlike what happens in Alzheimer’s disease, in which the diagnosis is made mainly after the age of 60.
Memory loss in frontotemporal dementia usually occurs later in the disease, as do delusions and hallucinations.
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